Keynoting LABEST: The Los Angeles Bioscience Ecosystem Summit
LABEST 2025 (Los Angeles Bioscience Ecosystem Summit), May 2025: Invited by Kite Pharma to deliver the morning keynote session. Moderated by Cindy Perettie, CEO of Kite. Approximately 1000 attendees including researchers, developers and cell and gene therapy experts. Arie Beldegrun, founder of Kite, told Laurie she was the best storyteller he had heard.
Keynoting the Advanced Therapies Congress: Philadelphia 2024
Advanced Therapies Congress, Pennsylvania Convention Center, Philadelphia, November 2024: Keynote speech to approximately 1200 attendees. Laurie shared the stage with Cindy Perettie, CEO of Kite Pharma.
Telling Her Story to Biotech Leaders: Biotech Alchemy Conference Philadelphia
Biotech Alchemy Conference, Philadelphia, September 2024: Keynote speech at a conference for biotech firms, venture capital, private equity and researchers, hosted at the Vu on 50 in downtown Philadelphia.
The Patient Perspective at the Bench: Wuxi Advanced Therapies
Wuxi Advanced Therapies, Navy Yard, Philadelphia, September 2024: Laurie toured the production facilities and delivered a 90-minute keynote to all company employees. Wuxi recently produced a product with Iovance to treat mucosal melanoma.
Bringing the Patient Voice to Advanced Therapy Week Miami
Phacilitate Advanced Therapy Week, Miami Convention Center, January 2024: Opening night plenary panel alongside a senior PE/VC financier, a biotech researcher, and the head of cell and gene therapy approvals at the FDA. Approximately 2100 attendees. Laurie was the patient representative and spoke about the real-world patient experience of CAR-T.
Taking the Patient Voice to Sacramento: California State Legislature Testimony
California State Legislature, Sacramento, May 2025: Laurie testified before the California State Legislature in support of Senate Bill SB 242, which would allow Medicare Advantage subscribers to purchase Medigap supplemental insurance plans. The bill passed out of committee.
Advocating on Capitol Hill: LLS Legislative Advocacy Washington DC
LLS DC Advocacy, February 2022: Laurie attended LLS Virtual DC Advocacy Day, holding 7 meetings in one day with senators and representatives on three issues: pediatric cancer research funding, clinical trial access, and a cap on Medicare Part D out-of-pocket costs for cancer prescriptions.
At the Frontier: Laurie Adami at the ACGT Cell and Gene Therapy Summit 2025
ACGT Summit 2025 coverage: documenting Laurie's participation in the Alliance for Cancer Gene Therapy's annual convening of researchers, clinicians, and patient advocates working on the future of cell and gene therapy.
The CAR-T Veteran: Resilience, Remission, and a Mission to Help Others
News-Medical.net interview (February 2025): A detailed conversation in which Laurie reflects on her journey from patient to advocate, her practical advice for newly diagnosed patients, and her mission to ensure broader access to CAR-T and other advanced therapies.
Speaking at the FDA: A Patient's Perspective on CAR-T Warning Labels and Risk Communication
FDA document: Laurie provided formal patient testimony on CAR-T therapy, including her perspective on the agency's black box warning decision and the importance of presenting risk data in context for patients facing terminal illness.
The Documentary That Gave Me Hope: How Emily Whitehead's Story Led Laurie to CAR-T
Emily Whitehead Foundation patient story: Laurie describes how watching a documentary about Emily Whitehead at an LLS event in 2012 first introduced her to CAR-T therapy and set her on the path to the treatment that eventually saved her life.
Why I Would Run to Immunotherapy: Laurie Adami in Conversation with CRI
Cancer Research Institute blog feature: A short interview piece in which Laurie speaks about immunotherapy's potential and her conviction that CAR-T's targeted approach represented a fundamental shift from the one-size-fits-all treatments she had previously endured.
From Patient to ImmunoAdvocate: Laurie Adami's Journey with the Cancer Research Institute
Cancer Research Institute ImmunoAdvocate profile: A written account in Laurie's own words of her twelve years in treatment, her experience as the first UCLA patient enrolled in the Yescarta trial, and the medically induced coma she experienced as a result of her tumor burden.
Six Treatments, No Remission - and Then CAR-T: Laurie Adami's Story
Alliance for Cancer Gene Therapy patient story: a detailed account of Laurie's full treatment history including the specific moment her oncologist delivered her clear scan results in August 2018.
Navigating Relapsed Follicular Lymphoma: A Patient-Centered Conversation
Association of Cancer Care Centers (ACCC) podcast episode 216, focused on a patient-centered approach to navigating relapsed or refractory follicular lymphoma. Laurie provided firsthand perspective on the treatment decision process.
The Patient Side of Access: Laurie Adami on the JCO Oncology Practice Podcast
JCO Oncology Practice Podcast episode on improving CAR-T access: Laurie's patient voice alongside clinical perspectives on what needs to change for more patients to reach these treatments.
Podcast: RX Group - How CAR-T Cell Therapy Saved My Life
RX Group Podcast: A conversation covering Laurie's diagnosis, her twelve years of treatment and relapse, how she discovered CAR-T, and her current work bridging the gap between patients and the healthcare industry.
Statistics Don't Color My Outcome: A CAR-T Success Story
The Bloodline with Blood Cancer United (Leukemia and Lymphoma Society podcast): Laurie speaks about her twelve-year journey through treatment and her path to remission through CAR-T therapy.
In Her Own Words: An Unfiltered Account of Twelve Years in Treatment
Mural Health's Portrait Project: A long-form written interview in which Laurie speaks in her own words about her full journey - from diagnosis through treatment, clinical trials, and her evolution into a patient advocate.
Speaking to the Industry: Laurie Adami at Biocom California
Biocom California: Laurie was the keynote speaker for the life sciences industry event.